Tuesday, April 3, 2012

Little Tidbit

Dear nurses and other hospital personnel,
Please realize when I ask you a question, I am curious as to why you are doing something, I am not angry, nor am I telling you, you are doing it wrong. I just want to know why. Also when I ask a question after you explained something, please don't just explain what you just said in the manner that you just used, obviously I didn't understand it the first time.
Patent in room 614

Ugh... today sucks. On top of being normal CF sick, I seem to have lost my voice. *sigh* I have to yell in order for them to hear me just above a whisper. On another note... I really want Jolly Ranchers... and Ice Cream... McDonalds? Not even a full week and I'm sick of the food here.

Also, for those curious they have me on 4 antibiotics. Vancomycin (with IV benadryl 15 minutes before), Levofloxacin, Tobramycin  and Ceftazidime. The IV benadryl has me super loopy all the time.

EDIT: I hate IV's, not my port but the stupid peripheral ones. I haven't had to deal with one in 5 years and now they want me to have it again. I guess my port isn't enough right now. Seriously, I was okay with having one thinking it was only for a day or so but really, now the one they placed a few days ago has come out and they tried 4 different times to put in a new one before I told them that they could kiss my ass and find a different way. I wanted to get a mid-line but those were "too risky" but its not risky to put all these corrosive antibiotics in my small veins? thats stupid.

Sunday, April 1, 2012

Lungs and Other stuff

I got a lung X-ray today, that was neat. I asked the X-ray tech if I could see them because I never had before and he let me see them. I could see my port and how cloudy my lower left lung is. I think everyone should have a chance to see their lungs, it really brought home to me how much I am damaging them sometimes. Yes I do more of my treatments now then I did when I was younger but really, I don't do all I should and I know that. Also, update from last time, it was IV Magnesium they were hanging. I didn't even know my levels were low. *face palm* I have asked the doctor to talk to me before any changes in my IVs, that way I can actually know what the heck is going on. (by the way, i'm bored so I'll be updating often.). They haven't talked about a discharge plan but I'm guessing it will be two weeks. I already missed my uncles memorial that was yesterday and a Post Secret event that is going to happen today. I really hope I can be out by my birthday next week but its not looking good. (BTW if you don't know what post secret is, then look it up and go there! its an amazing blog!)